Bill Directs Funding for Research of Neuro-Muscular Disease

Washington, DC – Today, Congressman Joe Baca (D-Rialto) introduced legislation in the House of Representatives to direct funding for research on the causes, effects and potential cures for Primary Lateral Sclerosis, or PLS.  The Understanding and Research of PLS Act would direct $2 million in the National Institute of Health (NIH) funding be appropriated to PLS research over the next four years. 

This legislation continues Rep. Baca’s efforts to raise awareness of PLS.  Last Congress, Rep. Baca introduced legislation that passed the House of Representatives, which encouraged Americans to recognize February 2009 as Primary Lateral Sclerosis Awareness Month.  In addition the legislation recognized the courage and dedication of Inland Resident and co-publisher of the Black Voice News, Hardy Brown – who is afflicted with PLS. 

“Every year, thousands of Americans and their families must deal with the devastating effects of PLS,” said Rep. Baca.  “It is critical we have both greater research and awareness into PLS and other neuro-muscular diseases.  I am proud to introduce this needed legislation, and will continue to work so the public and medical community is better informed of this debilitating illness.”   

PLS is a rare neuromuscular disease characterized by progressive muscle weakness in the voluntary muscles.  Due to the need for extensive testing, PLS can often be difficult to diagnose.  Sometimes confused with PLS, ALS, also known as Lou Gehrig’s disease, is a more fatal motor neuron disease that belongs to the same group of disorders.  While there is currently no cure for PLS, therapy has been shown to help enhance the functioning skills and comfort levels of afflicted individuals. 

Now, as America recognizes the first ever PLS Awareness Month, Rep. Baca has introduced the Understanding and Research of PLS Act to strengthen PLS awareness and research.  In addition, the Spastic Paraplegic Foundation will be holding events around the country, in honor of PLS Awareness Month, to raise awareness of the impact of the disease.

“Those courageous individuals, like Hardy Brown, who continue to thrive and prosper despite this disease are deserving of our utmost respect and admiration,” concluded Rep. Baca.  “I am hopeful my legislation will lead to a better understanding of PLS, and continue to educate people on the needs facing those afflicted with this illness and their families.”